Today, June 4 the Rossi, Wyman, and Potorski families will hold their 7th Annual Massachusetts Unbreakable Spirit Walk and Family Fun Day to raise money to find a cure for Osteogenesis Imperfecta.
Osteogenesis Imperfecta is characterized by fragile bones that break easily. It is also known as “brittle bone disease.” A person is born with this disorder and is affected throughout his or her life time.
Today's event kicks off at noon with a kid’s 50-yard dash, followed by the presentation of the Unbreakable Spirit Award to Dr. David Vernick for his dedication and hours spent volunteering his time to the Foundation and to the Osteogenesis Imperfecta community in a variety of ways. Dr. Vernick serves on the Osteogenesis Imperfecta Medical Advisory Council and has regularly answered e-mails from members of the Osteogenesis Imperfecta community with concerns about their hearing, made presentation for families at the biennial National Conference on Osteogenesis Imperfecta, and participated in regular scientific meetings organized by the Osteogenesis Imperfecta Foundation, all on a volunteer basis.
Throughout today's event, there will be plenty of family entertainment including a Kiddie Corner with lots of children’s games, face painter, magician, balloon artist, Star Wars Jedi Clinics, live music from the band Huck, massages for the adults, adult and kid raffles, and a silent auction including several pairs of Red sox tickets, VIP Tickets to the Daily Show with John Stewart, a Cape rental for a week and much more.
The 7th Annual Massachusetts Unbreakable Spirit Walk And Family Fun Day for Osteogenesis Imperfecta takes place from noon to 4 p.m. at Framingham State University's Maple Street Athletic Field. Admission is free. Below is a schedule of events.
Walker check-in – noon
Kids 50-yard dash – 12:15 p.m.
Kids Corner including sand art, face painting, games, music, glamour corner – noon
Magician and balloon animals – 1 p.m.
Star Wars Jedi Clinics – 1:30 p.m., 2 p.m., 3 p.m.
For additional information visit www.walkforoi.org